Non-Profits & Foundations

Breeds, raises, trains, and places service dogs with children and veterans with disabilities. First agency in the U.S. to place task-trained Autism Assistance Dogs with tracking skills. Places 120+ service dogs annually including autism, seizure, diabetes alert, and mobility dogs.

National

Nonprofit for families of children with Wolf-Hirschhorn syndrome (4p-), a rare genetic disorder caused by deletion on chromosome 4. Offers newsletters, biannual conferences, regional gatherings, and peer connections.

National

Founded in 1986 by parents of children with 5p- syndrome (Cri du Chat), a rare chromosomal deletion disorder affecting 50-60 U.S. births annually. Provides family support services, annual national meetings, newsletters, grandparent support, and a reference library.

National

Local Arc chapter serving Sedgwick County, providing advocacy, employment services, and community support for people with intellectual and developmental disabilities.

2919 W 2nd St N, Wichita, KS 67203

(316) 943-1191

Kansas · Wichita

World's largest charity for gamers with disabilities. Provides free assistive technology grants ('Expansion Packs') with customized gaming equipment, plus one-on-one accessibility consultations.

National

Provides information, financial support, and a support network for individuals with Aicardi syndrome and their families. Hosts the OurAicardiLife community and funds research.

(800) 374-8518

National

Nonprofit organization providing services for people with intellectual and developmental disabilities, including residential programs, employment services, and crisis support.

503-239-8101

Oregon · Portland

Advances awareness and treatment of Angelman syndrome through education, research funding, and support for individuals and families. Maintains a contact registry and hosts educational conferences for the AS community.

(800) 432-6435

National

Local ARC organizations across Vermont providing Advocacy, Resources, and Community opportunities for citizens with developmental disabilities and their families. Chapters include Central Vermont ARC, ARC of Northwestern Vermont, and ARC Rutland Area.

Vermont

Builds community for over 5,000 individuals and families affected by autism through education, advocacy, and support. Offers mini-grants up to $1,000/year for autism-related services.

10467 White Granite Drive, Suite 324, Oakton, VA 22124

571-328-5792

Virginia · oakton

State chapter providing information, support, and advocacy for individuals with autism and their families, including support groups, events, and resource navigation.

Oregon · Statewide

Autism advocacy organization providing resources, research funding, and community support for individuals with autism and their families.

National

One-to-one friendships, integrated employment, and leadership development for people with intellectual and developmental disabilities. Operates 93 friendship chapters across Virginia and DC.

7956L Tysons Corner Center, Tysons, VA 22102

833-646-6828

Virginia · tysons

Creates one-to-one friendships, employment opportunities, and leadership development for people with intellectual and developmental disabilities.

National

One of the oldest and largest service dog organizations (founded 1975). Provides expertly trained service dogs to adults, children, and veterans with disabilities. Dogs trained in up to 45 tasks. Six regional training centers nationwide. Dogs and all follow-up services provided at no cost.

National

The world's largest online community for connecting and supporting families of children with cerebral palsy. Offers a care guide, treatment information, financial resources, and tools to manage a child's care.

National

Provides expert advice, fact sheets, videos, podcasts, and a family toolkit for newly diagnosed families. Focused on lowering the age of detection from 2 years to 6 months so babies can start therapy earlier.

National

National network improving care for people with cerebral palsy through research, data collection, and evidence-based practices. Connects families with clinical resources.

National

Provides grants for adaptive sports equipment and athletic training for people with physical disabilities. Funds handcycles, running prosthetics, sports wheelchairs, and more.

National

Global leader empowering individuals with physical disabilities through grants for adaptive sports equipment, prosthetics, training, and competition travel. Has fulfilled over 52,000 funding requests since 1994.

9591 Waples Street, San Diego, CA 92121

(858) 866-0959

California · San Diego

Provides family support including new parent education, sibling and grandparent support groups, national conferences, training for professionals, and advocacy for individuals with CHARGE syndrome. Offers Spanish-language support.

(800) 442-7604

National

Provides information about ketogenic diet therapies and other dietary treatments for epilepsy, neurological disorders, and select cancers. Founded in honor of Charlie Abrahams.

National

Collaborative center of education, resources, and support for children with neurologic conditions. Offers free one-on-one Peer Support Specialists, the RARE Child Neurology Workgroup, and connections to medical professionals.

National

Quality-of-life grants, peer mentoring, and the Paralysis Resource Center with free information specialists. Provides funding for adaptive equipment, home modifications, and community programs.

1-800-539-7309

National

Founded by actor Colin Farrell, supports organizations and programs serving individuals with intellectual disabilities, inspired by his son who has Angelman syndrome.

National

International family support network serving over 3,500 individuals with Cornelia de Lange syndrome, a rare genetic condition occurring in 1 in 10,000 births. Ensures early and accurate diagnosis, promotes research, and provides family support services.

(800) 223-8355

National

The largest nonprofit dedicated to spinal muscular atrophy. Provides a nationwide support system including care packages, information packets, and family support staff while funding a comprehensive research program for treatments across all SMA types and ages.

(800) 886-1762

National

Parent-run charity improving the lives of people with GRI Disorders (GRIA, GRID, GRIK, and GRIN) through research, education, and support. These rare genetic conditions affect brain receptors critical for learning, memory, and development.

National

Founded 1974. Provides free comprehensive dental treatment through the Donated Dental Services program for people with permanent disabilities, those 65+, or medically fragile individuals who cannot afford care. Network of 15,000+ volunteer dentists and 3,600 dental labs nationwide.

National

National nonprofit fighting stigmas and advancing opportunities for people with disabilities. Provides resources on inclusive language, media representation, and disability etiquette.

National

Support, education, and community for families of individuals with Down syndrome across Arlington, Fairfax, Loudoun, Prince William, and Stafford counties.

703-621-7129

Virginia · oakton

Volunteer-run nonprofit raising research funds for Dravet syndrome and related epilepsies. Has awarded over $3.6 million in research grants and fellowships since 2009. Maintains an international patient registry and offers patient assistance grants.

National

Provides family support and advocacy for Dup15q syndrome for over 30 years. Offers resources for newly diagnosed families, annual conferences, and connections to research and clinical trial opportunities.

(313) 509-7984

National

Provides disability services including early childhood programs, therapy services, and support for individuals and families living with disabilities.

503-228-5108

Oregon · Portland

Leading nonprofit providing services for people with disabilities including early intervention, therapy, employment training, camping, and adult day programs.

1-800-221-6827

National

Center for Independent Living operated by and for individuals with disabilities in South Hampton Roads. Services include advocacy, peer counseling, independent living skills, housing assistance, employment, and assistive technology support.

6300 East Virginia Beach Blvd, Norfolk, VA 23502

(757) 461-8007

Virginia · Norfolk

Leading national nonprofit supporting people with epilepsy and seizure disorders through education, advocacy, research funding, and community programs.

1-800-332-1000

National

Statewide organization serving Virginians with epilepsy since 1978. Provides educational trainings, support networks, and self-management programs at no cost.

434-924-8669

Virginia · Northern Virginia

Connects families of children with disabilities to donated adaptive equipment at no cost including standing frames, walkers, bath equipment, adaptive bicycles, and therapy equipment. Serves over 600 families annually.

Virginia · Northern Virginia

Parent-created 501(c)(3) and global leader in SCN2A-related autism and epilepsy research, advocacy, and community. Serves 1,000+ families worldwide with research grants, patient assistance grants, family event grants, and a bereavement and crisis program.

National

Nonprofit providing practical information for parents and caregivers raising a child with a feeding tube. Offers guides on different tube types, troubleshooting, and a large community for peer support.

National

Supports foster, kinship, and adoptive families of children and youth with disabilities and special needs. Provides training, peer support, and resource navigation.

10304 Eaton Place, Suite 100, Fairfax, VA 22030

703-539-2904

Virginia · fairfax

The largest non-governmental funder of Angelman syndrome research in the world. Parent-founded organization driving transformative research and clinical trials toward a cure, with 9 global chapters and over $43 million raised since inception.

National

Funds research to better understand and treat Prader-Willi syndrome, a complex genetic condition causing chronic hunger, obesity risk, and developmental delays. Connects families with clinical trials and educational resources.

National

Parent-led global organization driving research to cure FOXG1 syndrome, a rare neurodevelopmental disorder causing seizures, movement difficulties, and limited communication. Supports and advocates for patients and families worldwide.

National

Directly funds research grants and fellowships at top universities worldwide to find treatments and a cure for Fragile X syndrome. Partners with biomedical and pharmaceutical companies to bridge the gap between research discoveries and actual treatments.

National

Leading rare disease advocacy organization offering educational programs, patient navigation services (RARE Concierge), and the annual RARE Advocacy Summit. Connects families with resources and community.

National

Foundation dedicated to supporting families affected by GNAO1 gene mutations, funding research, and connecting families worldwide. Provides resources, community support, and advances understanding of GNAO1-related disorders.

National

Nonprofit dedicated to building universally accessible playgrounds that bring together people of all abilities. Arbor Lodge Park playground in Portland is their flagship project.

Oregon · Portland

Center for Independent Living providing peer counseling, independent living skills training, advocacy, adaptive equipment at discounted prices, ADA consulting, and transportation/housing assistance.

815 Cherry Avenue, Charlottesville, VA 22903

(434) 971-9629

Virginia · Charlottesville

Center for independent living providing advocacy, peer mentoring, skills training, and information and referral for people with all types of disabilities.

1839 NE Couch St, Portland, OR 97232

503-232-7411

Oregon · Portland

Funds research to find treatments for CDKL5 deficiency disorder, a rare genetic condition causing seizures and developmental impairments. Connects families and builds community.

National

Funds scientific research and maintains the International CDKL5 Disorder Database. CDKL5 deficiency disorder causes early-onset seizures and severe developmental delays, primarily affecting girls. Provides family support and drives clinical research toward treatments.

National

Leading research, family support, and advocacy organization for Rett syndrome. Has funded over $60 million in peer-reviewed research grants and provides in-depth resources, education, and community connections for caregivers.

National

Parent-led foundation driving Kabuki syndrome research. Provides a Quick Start Guide for newly diagnosed families, global community events, connections to expert clinicians, and a global census for tracking affected individuals.

(646) 234-8625

National

Parent-founded nonprofit accelerating research and drug development for KCNT1-related epilepsy. In five years, elevated KCNT1 from a relatively unknown condition to one with a professional clinical network, international patient registry, natural history study, and biobank.

National

Supports families using ketogenic diet therapy for seizure management. Provides education, resources, and community for families navigating dietary treatments for epilepsy.

National

World leader in adaptive fitness and athletic performance, serving as the National Governing Body for USA Wheelchair Rugby. Offers 90+ weekly classes and competitive adaptive sports programs.

4000 Ridgeway Drive, Birmingham, AL 35209

(205) 313-7400

Alabama · Birmingham

National nonprofit providing parent education on learning disabilities, IEP guidance, evaluation support, and advocacy through state affiliates. Resources on dyslexia, dyscalculia, and other learning differences.

(412) 341-1515

National

Dedicated to improving lives of individuals with Lennox-Gastaut syndrome, a severe form of childhood-onset epilepsy. Funds research grants through their Cure LGS 365 program, educates the public, and supports affected families.

National

Nonprofit dedicated to empowering families and educating communities about lissencephaly, a rare neurological disorder. Provides equipment grants, family support programs, newly diagnosed family packets, and awareness events.

National

Private nonprofit advancing research and therapeutics for CDKL5 Deficiency Disorder. Since 2015, has funded over 100 research projects in 60+ labs across four continents. Hosts the annual CDKL5 Forum, the preeminent scientific meeting for this condition.

National

501(c)(3) nonprofit raising awareness and celebrating individuals with limb differences (symbrachydactyly, congenital, amputee). Creates parent support networks, links to medical resources, and hosts events.

National

Volunteer, parent-led organization improving lives of individuals affected by Malan syndrome, a rare genetic overgrowth and neurodevelopmental condition caused by changes in the NFIX gene affecting brain, muscle, and skeletal development. Provides support, outreach, and funds research.

National

Nonprofit that rescues shelter dogs and trains them as service dogs for seizure alert, diabetes alert, psychiatric alert, autism support, and light mobility assistance. Offers both full-service training and 'train your own service dog' programs.

National

The nation's leading community-based adaptive sports organization with 249 member organizations in 45 states, serving over 125,000 youth and adults annually across dozens of sports.

National

Supports people with muscular dystrophy and related neuromuscular diseases through research, care, and advocacy. Includes MDA Summer Camp.

1-800-572-1717

National

Free mental health support, education, and resources for individuals with mental illness and their families. Offers Family-to-Family classes and parent support groups for caregivers of children under 18.

571-458-7310

Virginia · arlington

Empowers parents to advocate for children with learning and attention issues. Provides special education resources, recruits parent advocates for policy influence, and supports 1 in 5 students with learning differences.

National

Provides information, advocacy, and support to families, individuals, and professionals involved with Down syndrome. Hosts annual convention.

1-800-232-6372

National

Leading human rights organization for people with Down syndrome, providing advocacy, education, research, and community programs.

1-800-221-4602

National

Provides support, education, and research funding for Fragile X syndrome, the most common inherited cause of intellectual disability and autism. Offers family support programs and regional events.

(800) 688-8765

National

Established in 1984, unites the Fragile X community through educational support, awareness, and research advancement. Hosts an international conference every two years attended by 1,000+ people from 50+ countries, connecting families with clinicians and researchers.

(800) 688-8765

National

Patient advocacy organization for individuals with rare diseases and disabilities. Provides financial assistance programs and a rare disease database.

National

Local Arc chapter serving Marion and Hamilton Counties, providing advocacy and support services for people with developmental disabilities.

7701 E 21st St, Indianapolis, IN 46219

(317) 375-2708

Indiana · Indianapolis

Supports, educates, and advocates for individuals affected by Noonan syndrome, a genetic disorder causing unusual facial features, short stature, and heart defects. Offers support groups, biennial conferences, and educational resources.

(866) 875-8928

National

Comprehensive database for disease-specific organizations, educational resources, and caregiver respite programs. Provides peer support, information, and advocacy for rare disease patients and families.

National

National nonprofit providing information, peer support, and networking for individuals who depend on home parenteral (IV) and/or enteral (tube) nutrition. Maintains a volunteer network offering telephone support, hospital visits, and local meetups.

National

Federally funded council promoting inclusion, self-determination, and independence for Oregonians with developmental disabilities through systems change and advocacy.

503-945-9941

Oregon · Statewide

Oregon's federally designated protection and advocacy system providing legal advocacy, information, and referral for people with disabilities.

610 SW Broadway, Suite 200, Portland, OR 97205

503-243-2081

Oregon · Statewide

Volunteer-run nonprofit where families help families navigate autism. Operates a listserv, membership meetings, parent support groups, and educational programs.

703-391-2251

Virginia · burke

Since 1979, custom-trains and places service dogs, seizure response dogs, hearing dogs, autism assistance dogs, and medical alert dogs. Works with individuals with MS, muscular dystrophy, cerebral palsy, spinal cord injuries, ALS. Dogs provided at no charge.

National

Supports everyone living with Phelan-McDermid syndrome, a rare neurodevelopmental condition caused by changes in the SHANK3 gene. Funds research toward treatments and cures while providing family resources, conferences, and community connections.

National

National organization providing education, support, and research advocacy for Prader-Willi syndrome, a complex genetic condition. Offers crisis intervention, publications, and an annual conference.

(800) 926-4797

National

Founded in 1975, provides a national and international network of information, support services, and research for families and professionals involved with Prader-Willi syndrome. Offers crisis support, educational materials, and chapter-based family connections.

(941) 312-0400

National

Provides information and support to families of persons with Smith-Magenis syndrome. Sponsors research, connects families with regional representatives, and offers webinars and educational resources for newly diagnosed families.

(972) 231-0035

National

Funds research to develop treatments and a cure for Rett syndrome, a rare genetic neurological disorder. Provides family resources, research updates, and community connections.

National

The largest worldwide funder of Rett syndrome research, advancing genetic medicines that target the root cause. Has invested over $92 million in research toward cures for Rett syndrome caused by MECP2 mutations.

National

Local chapter of The Arc providing advocacy, community programs, and support services for individuals with intellectual and developmental disabilities in the greater Richmond area.

2 N 2nd Street, Suite 100, Richmond, VA 23219

(804) 649-8481

Virginia · Richmond

Focuses on accelerating drug discovery and development of treatments for spinal muscular atrophy. Partners with biotech companies to advance therapeutic candidates and connects families to SMA resources worldwide.

(646) 253-7100

National

Nonprofit empowering individuals with disabilities through employment services, day support, creative arts, and community integration programs.

3600 Saunders Ave, Richmond, VA 23227

(804) 358-1874

National

Voluntary nonprofit providing support, information, and connections for families confronting a diagnosis of trisomy 18, 13, or related chromosomal conditions. Connects parents to local contacts and organizes annual conferences.

(800) 716-7638

National

Year-round sports training and athletic competition for children and adults with intellectual disabilities across Fairfax County, Arlington, and Alexandria. Supports over 3,500 athletes.

11350 Random Hills Road C-140, Fairfax, VA 22030

703-359-4301

Virginia · fairfax

National organization serving individuals with spina bifida through education, advocacy, research, and community programs.

1-800-621-3141

National

Established in 1950, providing advocacy, employment, community living, and support services for people with disabilities and their families in the St. Louis area.

1177 N Warson Road, Saint Louis, MO 63132

(314) 569-2211

Missouri · St. Louis

Raises awareness of STXBP1-related disorders and accelerates therapy development. Member of COMBINEDBrain, a consortium of 25 rare disease advocacy groups pooling resources to speed clinical trial readiness for neurodevelopmental disorders.

National

Family-started foundation honoring Julia, who passed from I-cell disease. Fills non-medical gaps for children who are seriously ill or have special needs — building ramps, providing adaptive equipment, granting wishes, home modifications, and dream trips for families.

9000 Mike Garcia Drive #140, Manassas, VA 20109

National · Northern Virginia, West Virginia

Entirely parent-led nonprofit supporting research and development of treatments for SYNGAP1-related disorder, which causes intellectual disability and epilepsy. Has committed over $1.2 million to research with 100% of donations going directly to science.

National

The largest national community-based organization advocating for and with people with intellectual and developmental disabilities.

National

Resources from The Arc on using respectful language when talking about intellectual and developmental disabilities, including tips for caregivers, educators, and community members.

(800) 433-5255

National

Local Arc chapter serving the Baton Rouge area, providing community programs, advocacy, and support services for people with intellectual and developmental disabilities.

12616 Jefferson Highway, Baton Rouge, LA 70816

(225) 927-0855

Louisiana · Baton Rouge

Statewide advocacy organization committed to protecting the rights of individuals with intellectual and developmental disabilities (IDD) and promoting opportunities for full inclusion. Provides advocacy, education, outreach, and community enrichment for individuals with IDD and their families throughout Connecticut.

170 Water Street, Naugatuck, CT 06770

(860) 246-6400

Connecticut

Local Arc chapter serving Detroit, Highland Park, and Hamtramck, providing advocacy and community programs for people with intellectual and developmental disabilities.

51 West Hancock Street, Detroit, MI 48201

(313) 831-0202

Michigan · Detroit

Statewide advocacy organization for people with intellectual and developmental disabilities providing information, referral, and community support.

404-634-9465

Georgia

Founded in 1954, provides quality direct and advocacy services for individuals with intellectual and developmental disabilities in Hawaii. Services include residential support, community programs, and systems advocacy with legislators to develop beneficial policies.

Hawaii

Local Arc chapter serving and advocating for individuals with intellectual and developmental differences, providing residential, employment, and community programs.

1050 N Davis St, Jacksonville, FL 32209

(904) 355-0155

Florida · Jacksonville

Local Arc chapter serving Kent County, providing disability services, advocacy, and community inclusion programs for individuals with intellectual and developmental disabilities.

2922 Fuller Ave NE Suite 201, Grand Rapids, MI 49505

(616) 459-3339

Michigan · Grand Rapids

Local Arc chapter providing community programs and support services for people with intellectual and developmental disabilities in the Macon area.

4664 Sheraton Dr, Macon, GA 31210

(478) 477-7764

Georgia · Macon

Affiliated chapter of The Arc promoting and protecting the rights of people with intellectual and developmental disabilities in Maine, supporting full inclusion and participation in the community throughout their lifetimes.

Maine

The largest statewide nonprofit organization dedicated to the rights and quality of life of persons with intellectual and developmental disabilities (I/DD) and their families, with 8,000 members and nine local chapters. Provides advocacy, residential, educational, and vocational services.

8601 Robert Fulton Drive, Suite 140, Columbia, MD 21046

(410) 571-9320

Maryland

State chapter of The Arc advocating for people with intellectual and developmental disabilities across Michigan.

1325 S. Washington Ave., Lansing, MI 48910

517-487-5426

Michigan

State chapter of The Arc promoting and protecting the rights of people with intellectual and developmental disabilities in Minnesota.

800 Transfer Rd., Suite 7A, St. Paul, MN 55114

952-920-0855

Minnesota

The largest nonprofit in New York State, serving over 60,000 people with intellectual and developmental disabilities through 55 chapters. Founded in 1949, provides residential services, guardianship, employment supports, preschools, and recreational opportunities statewide.

New York

Independent Arc affiliate chapter serving northeastern Minnesota including St. Louis, Carlton, Lake, Cook, Itasca, and Koochiching Counties with advocacy and inclusion services.

Suite 302, 222 E Superior Street, Duluth, MN 55802

(218) 726-4725

Minnesota · Duluth

Statewide advocacy organization for people with intellectual and developmental disabilities, offering resources, support, and community programs.

557 S Lawrence St, Montgomery, AL 36104

334-262-7688

Alabama

Alaska's chapter of The Arc, providing a full array of disability services from birth throughout life for Alaskans with intellectual and developmental disabilities. Programs include residential support, employment assistance, and creative arts through the Sparc studio.

Alaska

Advocates for the rights and full community participation of all people with intellectual and developmental disabilities in Arizona. Partners with local chapters to provide services, support, advocacy, and public policy efforts statewide.

(602) 243-1787

Arizona

Statewide nonprofit advocating for and with people with intellectual and developmental disabilities, providing resources and community support.

501-375-7770

Arkansas

Local Arc chapter serving Benton County, providing supports and services for people with intellectual and developmental disabilities.

928 NW Beca Avenue, Corvallis, OR 97330

(541) 753-1711

Oregon · Corvallis

Advocates for people with intellectual and developmental disabilities since 1950. Monitors legislation, mobilizes grassroots advocacy, and provides educational events, resources, and trainings for the disability community in English and Spanish.

916-567-0163

California

Local Arc chapter serving the Birmingham area, providing lifelong support services for people with intellectual and developmental disabilities.

6001 Crestwood Boulevard, Birmingham, AL 35212

(205) 323-6383

Alabama · Birmingham

Local Arc chapter providing day support programs, advocacy, and community-based services for individuals with intellectual and developmental disabilities in the Lynchburg area.

1508 Bedford Ave, Lynchburg, VA 24504

(434) 845-4071

Virginia · Lynchburg

Promotes and protects the human rights of people with intellectual and developmental disabilities and supports their full inclusion in the community. Provides educational information, connects families to resources, and advocates on behalf of individuals with IDD.

1580 Logan Street, Suite 930, Denver, CO 80203

(303) 864-9334

Colorado

Statewide nonprofit advocating for and serving Delawareans with intellectual and developmental disabilities (IDD) and their families since 1953. Programs include housing, employment, case management, advocacy, self-advocacy, and social and recreational activities.

2 South Augustine Street, Suite B, Wilmington, DE 19804

(302) 996-9400

Delaware

Local Arc chapter providing advocacy, information and referral, respite care, and supported community living for individuals with intellectual and developmental disabilities.

680 2nd Street SE, Cedar Rapids, IA 52401

(319) 365-0487

Iowa · Cedar Rapids

Statewide nonprofit advocating for people with intellectual and developmental disabilities, with local chapters offering direct services throughout Florida.

850-921-0460

Florida

Local Arc chapter providing advocacy and community services for individuals with intellectual and developmental disabilities in the greater Louisville area.

177 Travis Road, Shepherdsville, KY 40165

(502) 939-8273

Kentucky · Louisville

Local Arc chapter serving the Greater New Orleans area, providing advocacy and support services for individuals with intellectual and developmental disabilities and their families.

925 Labarre Road, Metairie, LA 70001

(504) 881-1904

Louisiana · New Orleans

State chapter of The Arc advocating for people with intellectual and developmental disabilities across Illinois.

20 N. Wacker Dr., Suite 1540, Chicago, IL 60606

217-522-1836

Illinois

State chapter of The Arc promoting and protecting the rights of people with intellectual and developmental disabilities in Indiana.

143 W. Market St., Suite 200, Indianapolis, IN 46204

317-977-2375

Indiana

State chapter of The Arc promoting and protecting the rights of people with intellectual and developmental disabilities in Iowa.

515-276-9608

Iowa

State chapter of The Arc advocating for people with intellectual and developmental disabilities across Kansas.

Kansas

Statewide advocacy organization for people with intellectual and developmental disabilities, providing resources, support, and policy advocacy.

502-875-5999

Kentucky

Local Arc chapter serving Lane County, providing advocacy and community-based services for people with intellectual and developmental disabilities.

4181 E Street, Springfield, OR 97478

(541) 343-5256

Oregon · Eugene

Statewide nonprofit advocacy organization for people with intellectual and developmental disabilities providing resources and community support.

225-383-1033

Louisiana

Local Arc chapter championing advocacy, acceptance, and inclusion for people with intellectual and developmental disabilities, including group homes, early childhood programs, and an autism clinic.

1100 Washington St NW, Huntsville, AL 35801

(256) 539-2266

Alabama · Huntsville

Enhances the lives of people with intellectual and developmental disabilities, including autism, and their families through advocacy for community supports, inclusive programs, and community engagement. Drives change through advocacy, legislation, and funding at state and federal levels.

Massachusetts

Local Arc chapter serving Mecklenburg County/Charlotte area with advocacy and support services for individuals with intellectual and developmental disabilities.

4108 Park Road, Suite 200, Charlotte, NC 28209

(704) 332-4535

North Carolina · Charlotte

Statewide advocacy organization for people with intellectual and developmental disabilities, providing resources and community support.

601-355-0220

Mississippi

State chapter of The Arc advocating for people with intellectual and developmental disabilities across Missouri.

Missouri

Wyoming chapter of The Arc serving people with intellectual and developmental disabilities in the Casper area. Provides advocacy, community inclusion programs, and resources for individuals and families navigating disability services.

Wyoming

State chapter of The Arc promoting and protecting the rights of people with intellectual and developmental disabilities in Nebraska.

1672 Van Dorn St., Lincoln, NE 68502

402-475-4407

Nebraska

Ensures every Nevadan and family living with intellectual and developmental disabilities has access to information and support for full, inclusive lives. Serves all ages with programs focusing on education, family support, grassroots advocacy, and community inclusion.

6050 South Buffalo Drive, Las Vegas, NV 89113

702-262-1514

Nevada

Supporting citizens with intellectual and developmental disabilities since 1954 in New Hampshire. Promotes and protects the human rights of people with IDD, actively supporting their full inclusion and participation in the community.

New Hampshire

New Jersey's largest organization advocating for and serving children and adults with intellectual and developmental disabilities and their families. Provides information, supports, and services through a strong network of local county chapters statewide.

985 Livingston Ave, North Brunswick, NJ

(732) 828-2022

New Jersey

Since 1955, on the front lines making change for people with autism, Down syndrome, Fetal Alcohol Spectrum Disorder, and other intellectual and developmental disabilities. Provides advocacy, family support, housing, and information and referral services.

3655 Carlisle Boulevard NE, Albuquerque, NM 87110

(505) 883-4630

New Mexico

Statewide advocacy organization for people with intellectual and developmental disabilities providing resources, support, and community programs.

919-782-4632

North Carolina

State chapter of The Arc promoting and protecting the rights of people with intellectual and developmental disabilities in North Dakota.

North Dakota

Volunteer-based local Arc chapter serving northeast Mississippi, providing advocacy and community programs for individuals with intellectual, developmental, and other disabilities.

231 Rankin Blvd, Tupelo, MS 38804

(662) 212-1850

Mississippi · Tupelo

Advocacy organization for people with intellectual and developmental disabilities, providing resources, support, and community.

Virginia · Northern Virginia

State chapter of The Arc advocating for people with intellectual and developmental disabilities across Ohio.

1335 Dublin Rd., Suite 100-A, Columbus, OH 43215

614-487-4720

Ohio

Promotes and protects the human rights of people with intellectual and developmental disabilities, serving all 77 Oklahoma counties. Services include special education advocacy, residential advocacy, caregiver trainings, resource navigation, and bilingual support groups.

2516 E 71st St Ste A, Tulsa, OK 74136

(918) 582-8272

Oklahoma

Local Arc chapter at the Ollie Webb Center serving the Omaha area, providing advocacy, inclusion programs, and support for individuals with intellectual and developmental disabilities.

1941 S 42nd St Ste 122, Omaha, NE 68105

(402) 346-5220

Nebraska · Omaha

Largest advocacy organization for individuals with intellectual and developmental disabilities in Pennsylvania since 1949. Over 40 local chapters representing over 14,000 members, offering customized employment programs, inclusive education, and ACRE certification training.

Pennsylvania

Provides services and advocacy for people with intellectual and developmental disabilities in the Roanoke Valley including residential services, day support, and community engagement programs.

(540) 344-2120

Virginia · Roanoke

Statewide advocacy organization for people with intellectual and developmental disabilities, providing resources, programs, and community support.

803-748-5020

South Carolina

State chapter of The Arc promoting and protecting the rights of people with intellectual and developmental disabilities in South Dakota.

South Dakota

Local Arc chapter serving over 1,000 Miami-Dade County citizens with intellectual and developmental disabilities through community programs and support services.

14100 Palmetto Frontage Road, Suite 200, Miami Lakes, FL 33016

Florida · Miami

Local Arc chapter providing community-based services, day support programs, respite care, and advocacy for individuals with intellectual and developmental disabilities.

958 First Colonial Road, Virginia Beach, VA 23454

(757) 461-4NRC

Virginia · Virginia Beach

Founded in 1957, providing advocacy, respite care, and supported community living for children and adults with intellectual and developmental disabilities in Johnson and surrounding counties.

2620 Muscatine Ave, Iowa City, IA 52240

(319) 351-5017

Iowa · Iowa City

Local Arc chapter founded in 1963, providing advocacy, after-school programs, and community-based services for individuals with intellectual and developmental disabilities in southwest Georgia.

220 Stuart Avenue, Albany, GA 31707

(229) 888-6852

Georgia · Albany

Founded in 1953, advocates for the rights of Texans with intellectual and developmental disabilities. Provides resources on education, guardianship, employment, and finances. Operates the Master Pooled Trust and a network of 23 local chapters across Texas.

Texas

Serving persons with intellectual disabilities in Washington DC and their families since 1950. Offers counseling, family support, supported employment, and day programs. The only community-based nonprofit working for people with I/DD throughout their lifetimes and across all diagnoses.

1825 K Street NW, Suite 1200, Washington, DC 20006

(202) 636-2950

District of Columbia

Local Arc chapter serving southwest Missouri, providing community support, applied behavior analysis, family advocacy, and community living services.

1501 E Pythian St, Springfield, MO 65802

Missouri · Springfield

Serves individuals with intellectual and developmental disabilities in the Charlottesville and central Virginia area through community programs, advocacy, and family support.

200 Garrett Street, Suite T, Charlottesville, VA 22902

(434) 977-4002

Virginia · Charlottesville

Local Arc chapter serving the Raleigh-Durham Triangle area, providing advocacy and community support for people with intellectual and developmental disabilities.

5121 Hollyridge Drive, Raleigh, NC 27612

(919) 942-5119

North Carolina · Raleigh

The nation's largest community-based organization for people with intellectual and developmental disabilities. Provides advocacy, resources, education, and support through 600+ state and local chapters.

1-800-433-5255

National

Supports and advocates for people with cognitive, intellectual, and developmental disabilities. Programs include providing computers, after-school learning, respite pool, caregiver training, holiday giving program, and information and referral services.

155 S 300 W Suite 201, Salt Lake City, UT 84101

Utah

Statewide advocacy organization for people with intellectual and developmental disabilities providing legislative advocacy, family support, and connections to local Arc chapters across Virginia.

2025 E Main Street, Suite 120, Richmond, VA 23223

(804) 649-8481

Virginia · Statewide

Advocates for and serves people with intellectual and developmental disabilities across Washington. Provides information, referral services, legislative advocacy, and supports local chapters throughout the state working toward full inclusion and community participation.

Washington

State chapter of The Arc promoting and protecting the human rights of people with intellectual and developmental disabilities, supporting full inclusion and community participation since 1955.

1917 Dudley Avenue, Parkersburg, WV 26101

304-422-3151

West Virginia

Statewide advocacy organization for people with intellectual and developmental disabilities and their families, providing information, referral, and systems advocacy.

Oregon · Statewide

Local Arc chapter serving Portland metro area, providing advocacy, services, and supports for individuals with intellectual and developmental disabilities and their families.

6929 NE Halsey, Portland, OR 97213

(503) 223-7279

Oregon · Portland

Part of a nationwide network of over 550 chapters dedicated to supporting individuals with intellectual and developmental disabilities. Offers advocacy, residential and vocational services, person-centered and financial planning, and programs guiding families through the special education system.

PO Box 3929, Pawtucket, RI 02861

(401) 585-6755

Rhode Island

Local Arc chapter providing services for individuals with intellectual and developmental disabilities in the Tampa Bay region.

1501 N Belcher Rd Ste 249, Clearwater, FL 33765

(727) 799-3330

Florida · Tampa Bay

Statewide advocacy organization for people with intellectual and developmental disabilities providing resources, advocacy, and community support.

615-248-5878

Tennessee

Montana's first chapter of The Arc, formerly MDSC, serving adults with developmental and intellectual disabilities since 1990. Programs include day services, residential group homes, 24-hour nursing support, and behavioral support services promoting independence and inclusion.

Montana

State chapter of The Arc with 25 local chapters, developing programs and advocating for public policy that gives people with intellectual and developmental disabilities opportunities to learn, live, and work inclusively.

Wisconsin

Serves individuals with developmental disabilities in Boise, Idaho. Programs include job training, life skills training, residential care homes, recreation programs, and resource referral services. Accredited by RSAS and licensed by the State of Idaho.

Idaho

Supports families affected by GNAO1, a rare genetic neurological disorder causing movement disorders and epilepsy. Funds research, raises awareness, and connects GNAO1 families with resources and community.

National

Hosts Night to Shine, a worldwide prom experience for people with special needs ages 14+. Events held at churches in all 50 states and internationally.

National

Founded in 1974 by four mothers of children with TSC, the TSC Alliance is the leading nonprofit for tuberous sclerosis complex. Catalyzes new treatments, drives research toward a cure, and provides lifelong support including discussion groups, educational materials, and family services.

(800) 225-6872

National

Dedicated to finding a cure for tuberous sclerosis complex (TSC) while improving the lives of those affected through research, education, advocacy, and support services.

(800) 225-6872

National

National organization advancing the independence and inclusion of people with cerebral palsy and other disabilities through programs and advocacy.

National

Supports families facing leukodystrophy diagnoses for over 35 years. Provides referrals, support groups, professional and patient education, and educational materials connecting families with medical resources and peer support.

(800) 728-5483

National

Advocacy, peer support, and resource referrals for people with spinal cord injuries and disorders. Publishes New Mobility magazine and operates a free resource center.

1-800-404-2898

National

Center for Independent Living serving the Shenandoah Valley. Provides advocacy, peer counseling, independent living skills training, and information/referral services for people with disabilities.

3210 Peoples Drive, Suite 220, Harrisonburg, VA 22801

(540) 433-6513

Virginia · Harrisonburg

Dedicated to improving the lives of individuals with Williams syndrome through education, enrichment programs, and research. Provides family resources and an annual convention.

(800) 806-1871

National